Featured Organization for September 2010

INTRODUCTION:

Meet Cade Trobert 11 years old and his cousin Katelyn Stare 15 years old from Newark Ohio. Both are battling and beating Spinal muscular Atrophy (SMA) Type 2. They are very active in their community and school. Cade loves sports and Katelyn is enjoying the high school scene. Ten years ago they joined in the Fight to Cure SMA by fundraising for the SMA Lab at The Ohio State University. Every year, in the fall, they host the following fundraiser: The Cade & Katelyn "Cure SMA" Charity Golf Classic.

There is HOPE:
The families of Cade & Katlyn know a "Cure fore SMA" is within our reach, thanks to the many breakthrough discoveries by the OSU researchers. The most recent breakthrough in the efforts to "Cure SMA" is the current and promising Gene Replacement Therapy Program.

OBJECTIVE:
The Cade & Katelyn "Cure SMA" Charity Golf Classic will be September 25, 2010 at the Links at Echo Spring ( 5940 Loudon Street Rd, Johnstown Ohio 43031). Team fee is $300 and Hole Sponsorship fee is $100. The outing include; green fees, shared cart, breakfast, lunch, prizes and special event holes. The family and friends of Cade & Katelyn have made a commitment to continue to hold this annual event until the ultimate goal of a "Cure Fore SMA" is achieved. Thanks to the efforts of many volunteers, corporations and friends, the past nine golf events raised over $220,000 for scientific research towards a Cure Fore SMA.

PLEASE DONATE!

Please consider joining s in our efforts for a "Cure" to end this devastating disease. If golfing is not your cup of "tee", consider being a team sponsor, hole sponsor, donate a door prize or JUST plain make a cash donation to the fund. 100% of all proceeds will go to the Cade and Katelyn Fund at OSU/SMA research Tax ID # is 31-1145986 (Fund is house at The OSU Foundation) Contact Todd & Michelle Torbert at 740-763-0169 or Duane & Kelly Stare at 740-323-4095 for more information on the golf classic and the fund.

Please mark on your donation via computer or check memo...

Directed from Miracle for Madison & Friends

so we can track the donations!

Featured Friend for September 2010

INTRODUCTION:
Hi, this is Roman Anderson. He was born on May 11th 2007, and was 8lbs 4ozs and 21.25 inches long. When he was just 4 weeks old I noticed he was more floppy than most babies so I spoke with his pediatrician. The doctor sent a referral to Cincinnati Children’s neurologist and we made an appointment for July 12th. But we were not able to wait that long. On July 8^th 2007, Roman was rushed to the hospital because he wasn’t breathing. The hospital ran so many tests, including one for Spinal Muscular Atrophy, SMA. By a few days after that admission, everyone was fairly certain that Roman had SMA type I.

There is HOPE:
Ohio State University and Nationwide Children’s Hospital, in Columbus, Ohio, have been spearheading ground breaking Gene Therapy research that has proved "effective" in animal models! In addition, recent reports have stated that SMA is the "closest genetic disorder to a cure"…This is truly inspiring for families and individuals who have been battling this condition for years.

OBJECTIVE:
Roman celebrated his 3rd birthday in May of 2010. We cherish every day we have with him and are so thankful that we have had 3 years after being told that we may only have months! So we will continue to make everyone of his days great for him! By donating to Miracle for Madison & Friends, in honor of Roman, you’re helping us find a cure him and the thousands of other people!

A little more about Roman:
Roman is a typical 3 year old boy. He idolizes his big brother, Austin, and his Daddy, Matt. Toy Story, SpongeBob, flying with his family for the first time to California, and arts & crafts are also favorites. Roman absolutely loves school and learning. When he isn’t busy creating artwork, watching Daddy and Austin play basketball, he loves driving his power wheelchair and playing baseball on his team, the Pirates. Roman could not adore anyone more than his Mommy, who is constantly challenging herself and Roman to try new things. He’s also learning to communicate his desires and needs with his communications device, called an Echo. Although Roman may appear to be extremely physically limited by SMA, he leads a very full life. He can’t do a lot independently but, at age 3, Roman has experienced & enjoyed a lot more of life than many people do in a lifetime.

PLEASE DONATE!
To donate, please locate the "Donate Here" tab, on the far right at the top of the Friends in the Fight page, to have funds directed towards this groundbreaking research in SMA.
Please mark on your donation via computer or check memo...

IN HONOR of ROMAN A.

so we can track the donations!

In Closing...
We sincerely THANK YOU for considering making a donation in honor of Roman. We hope that in addition to a donation, you will consider spreading the awareness of SMA. With your help, we can be a part of a great miracle – a cure for Spinal Muscular Atrophy – a cure for Roman and his friends!
For additional information on the OSU ground breaking research on SMA, please visit the Miracle for Madison website, by clicking HERE!

Love
The Anderson Family
Susie, Matt, Austin, & Roman