Hi, this is Roman Anderson. He was born on May 11th 2007, and was 8lbs 4ozs and 21.25 inches long.
When he was just 4 weeks old I noticed he was more floppy than most babies so I spoke with his pediatrician. The doctor sent a referral to Cincinnati Children’s neurologist and we made an appointment for July 12th. But we were not able to wait that long. On July 8th 2007, Roman was rushed to the hospital because he wasn’t breathing. The hospital ran so many tests, including one for Spinal Muscular Atrophy, SMA. By a few days after that admission, everyone was fairly certain that Roman had SMA type I. There is HOPE:
Ohio State University and Nationwide Children’s Hospital, in Columbus, Ohio, have been spearheading ground breaking Gene Therapy research that has proved "effective" in animal models! In addition, recent reports have stated that SMA is the "closest genetic disorder to a cure"…This is truly inspiring for families and individuals who have been battling this condition for years.
OBJECTIVE:
Roman celebrated his 3rd birthday in May of 2010. We cherish every day we have with him and are so thankful that we have had 3 years after being told that we may only have months! So we will continue to make everyone of his days great for him! By donating to Miracle for Madison & Friends, in honor of Roman, you’re helping us find a cure him and the thousands of other people!
A little more about Roman:
Roman is a typical 3 year old boy. He idolizes his big brother, Austin, and his Daddy, Matt. Toy Story, SpongeBob, flying with his family for the first time to California, and arts & crafts are also favorites. Roman absolutely loves school and learning. When he isn’t busy creating artwork, watching 
Daddy and Austin play basketball, he loves driving his power wheelchair and playing baseball on his team, the Pirates. Roman could not adore anyone more than his Mommy, who is constantly challenging herself and Roman to try new things. He’s also learning to communicate his desires and needs with his communications device, called an Echo. Although Roman may appear to be extremely physically limited by SMA, he leads a very full life. He can’t do a lot independently but, at age 3, Roman has experienced & enjoyed a lot more of life than many people do in a lifetime.
PLEASE DONATE!
To donate, please locate the "Donate Here" tab, on the far right at the top of the Friends in the Fight page, to have funds directed towards this groundbreaking research in SMA.
Please mark on your donation via computer or check memo...
IN HONOR of ROMAN A.
so we can track the donations!
In Closing...
We sincerely THANK YOU for considering making a donation in honor of Roman. We hope that in addition to a donation, you will consider spreading the awareness of SMA. With your help, we can be a part of a great miracle – a cure for Spinal Muscular Atrophy – a cure for Roman and his friends!
For additional information on the OSU ground breaking research on SMA, please visit the Miracle for Madison website, by clicking HERE!
The Anderson Family
Susie, Matt, Austin, & Roman
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