INTRODUCTION:
Karah was born in March 2007 and by August 2007 she was diagnosed w/ SMA Type1. SMA has no cure nor treatment and sadly as many as 90% of SMA type1 children die by age 2.
There is HOPE:
Ohio State has ground breaking research that is proving "effective"!
And recent reports have SMA as the quote "closest genetic disorder to a cure"
Type 1 clinical trials could start w/in the next 18months.....
Walk for a CURE:
In August we will walk among friends and family to support kids like Karah and help fund research to find a CURE! We ask for your help in donations to help us reach that goal!
OBJECTIVE:
Karah celebrated her 3rd birthday in March 2010, surpassing many other SMA children who have sadly earned their angel wings; By donating and helping us find a cure for SMA, you can help her and the thousands of other children afflicted w/ this terrible disease, grow up and have a better quality of life!
A little more about Karah:Karah is a typical 3 year old; she loves her sister and brother, barney, littlest pet shop, and dress up....Her physical disabilities are quite limiting yet SMA does not affect her brain! Her daily care is much more demanding than a non-SMA child and she does require skilled care around the clock--- However even w/ all that she is a very happy, loving girl who loves life! and we would not change anything, except find a cure!
PLEASE DONATE!
To donate, please locate the "Donate Here" tab, on the far right at the top of the page, to have funds directed towards this groundbreaking research in SMA.
Please mark on your donation via computer or check memo...
IN HONOR of KARAH B.
so we can track the donations!
In Closing...
We sincerely THANK YOU for your donation and for spreading the awareness of SMA....
For additional information on the OSU ground breaking research on SMA, please visit the Miracle for Madison website, by clicking HERE!
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