My beautiful wife Catherine and I had tried unsuccessfully a few times to have a child. But finally on Feb. 27 of 2009 all our prayers and dreams had come true. My wife gave birth to the light of our lives, our precious angel Sophia.
She was just a perfect baby.
She had all her fingers and toes and she was just beautiful. At about 2 weeks we started to notice something was wrong. Sophia wasn't moving as much as we thought she should and it was dismissed by our pediatrician as she was just a lazy baby. By the time 5 weeks came around the Dr suggested we have her tested for a neurological disease called Spinal Muscular Atrophy. After a grueling 2 weeks of waiting the results came back and my daughter tested positive.
There are no words to describe the feeling of helplessness we felt. The child that you have waited your whole life for would be taken from you in six months and she could last 2 years if you are extremely lucky.
There is HOPE:Sophia's Cure is in the Pepsi Refresh Contest currently in 3rd place! They are now committing the entire $250k to the promising gene replacement therapy at OSU/NCH if they WIN! They need mor
e daily votes to reach the #1 or #2 place to win the money! PLEASE VOTE DAILY & pass it along to all your email friends and coworkers!OBJECTIVE:
Sophia's Cure Foundation is a non for profit organization which was formed shortly after our daughter was diagnosed with Spinal Muscular Atrophy. The foundation was created to assist in funding for clinical research towards finding a cure for SMA and to offer support to families affected by this disease by providing advocacy, awareness, education and support.
We believe every child affected by SMA should be given a chance to live a long and normal life.
To donate, please visit Sophia's Cure website and donate to Sophia's Cure to continue supporting their efforts and to have funds directed towards this groundbreaking research in SMA.
Please mark on your donation via computer or check memo...
In Closing...
We would like to thank everyone, in advance, for their support, donations and for spreading the awareness of SMA!!
For additional information on the OSU ground breaking research on SMA, please visit the Miracle for Madison website, by clicking HERE!
The Sophia's Cure Team
Vincent, Catherine, Sophia & Supporters
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